Hemorrhagic/Radiation Cystitis Patient Registry

We are happy to highlight the hemorrhagic/radiation cystitis patient registry linked below.

 

The potential uses of this registry include improving the scientific understanding of radiation cystitis, discovering trends and common needs of registry participants, describing the aggregate personal characteristics of patients within the registry, documenting registry patient medical histories, and contacting registry participants to inform them of new studies. The goal of the registry is to create a resource to help doctors and researchers better recognize severe complications that arise long after pelvic radiation treatments.

 

This registry has been created and developed within the published guidance of the National Institute of Health Rare Diseases Registry Program (RaDaR) and is not affiliated with the RC foundation. As a reminder, please review the registry instructions and disclosures before deciding to participate.

If you are interested, the form takes about 5 minutes and is located via the link below.